Though coping with the pain was about all I could handle, I tried to do something for others, or accomplish something each day. I would send a couple emails to friends or family, write the LDS missionaries, create a poem, clean a shelf etc. Sitting in the sunshine and being outside helped. Winters were especially hard. I watched old comedies and musicals -- anything upbeat and diverting. TV numbs the brain and the pain. I tried to move when I could, as often as I could. Hot baths helped so much. I had fibromyalgia too. I listened to or watched LDS Church videos (I specially like the Bible Videos), the Ensign, and General Conference. It helped me keep together when the pain was getting more than I could handle and I couldn't concentrate or focus to read. My immune system was failing so I couldn't take any medication for pain. Priesthood blessings helped me to make it. The scriptures were, and still are, my lifeline. I had a few experiences where I had reached the end of my strength, and the Lord helped me. I now know that no matter how difficult and painful my life can be, the Lord will be there. He will carry me when I can't walk any further. His love and strength comforted and sustained me.
Little things bothered me. Noises made me jump. They hurt my ears and exhausted me. It helped if I could be somewhere else when my husband did noisy things such as running a vacuum. I often felt so sick to my stomach and had difficulty gagging down food. I didn't have any appetite. Having nutritious organic food that was prepared and I only had to heat it up in the microwave helped. Also smooth foods which didn't need chewing such as soups and applesauce went down easier. Spicy foods just made my stomach worse. I needed more salt and plenty of filtered water to keep me from getting light headed.
Sometimes, I spent the night in the tub, on the sofa, or in the recliner. I knew that there was nothing my husband could do to help me, and his not getting a good night's sleep would not help either of us. Soft but supportive furniture also helped. For awhile I had a waterbed. I didn't try to drive. I knew I wasn't alert enough or up to fast moving activity. Comfortable cotton clothes made life bearable, but mainly what got me through was prayer.
Hope this helps.